Type 1, TrialNet, and Toronto…

Three out of four of us are currently tucked into a hotel in downtown Toronto. (The fourth got to enjoy a dinner date with Oma followed by a sleepover before she packs him off to school in the morning.) This country girl loves coming down to the city, but finds it so bright and noisy at night.

We are headed to SickKids tomorrow for our oldest to participate in a follow up study with TrialNet. Once you get through traffic – the DVP always makes me nauseous… three accidents tonight and just a sea of red taillights – it’s a fun little trip until the actual appointment. We come down the night before, enjoy dinner, walk around, use the pool, tuck into bed, wake up, and skip breakfast to begin a morning of blood work. No sleeping in…

Oral glucose tolerance test… lots of labs… and then he’s sent home with a gift card for his services. Wait six months. Repeat.

Why do we put him through this? Because he didn’t “pass” the initial screening, he’s a candidate to help in research towards prevention and treatment of Type 1 diabetes… and hopefully, one day, a cure. If our little efforts can assist so that another family doesn’t have to live with pokes and needles and expensive life-saving medicines, it’s all worth it. (Plus, they’re watching his health at the same time.)

I have been Type 1 for 30+ years and we’ve come a long way, baby! The strides that have been taken since the days of Banting & Best ensure this isn’t a death sentence in most developed countries. However, the disease is time-consuming, expensive, and can have devastating consequences. Even with improved technology, there are days that look like a roller coaster when it comes to blood glucose management.

Case in point: today I woke up in target, had a device issue half way through the morning, corrected with an injection, watched my blood sugar stubbornly sit high for most of the afternoon, (and resisted the rage bolus) only to crash before dinner and then again on the drive down.

Thankfully, after dinner out (Fran’s is delicious!) and a walk downtown (plus two marshmallow bananas), we’re exactly where we should be pre-bedtime. However, I’ll be waking up at least twice through the night to check things again.

This is just one small portion of the thought and planning that goes into anything. Under 5? Can’t drive. Late for work. Drop too low? Migraine for a day. Creeping high? Sore eyes and uncomfortable thirst. Sustained highs? Kidney damage, blindness, and nerve issues.

So if WE can help figure this thing out in a global collaboration with an overnight trip and day off of school? Count us in.

Here’s a poster from Test 1 Drop that you should save. T1D is not to be messed with. Tragedy can be averted if treatment is started early enough. Know the signs and symptoms. Any time your instinct says something is not right, or it’s more than just the flu, ask for a quick finger poke.

Type 1 diabetes IS NOT caused by diet or exercise and is considered an autoimmune disorder. It is different from Type 2, Gestational, and other “diabetes.” While commonly referred to as juvenile diabetes, you can be diagnosed at any age.

I am our why. Our son is our why. My friends are our why. Strangers across the globe are our why. Every family that has lost a loved one to this disease is our why. As the JDRF says… let’s turn Type 1 into type none.

2 thoughts on “Type 1, TrialNet, and Toronto…

  1. Thank you for educating others about Type 1 diabetes–and for sharing our poster. Our three grandchildren just participated in TrailNet, as their mom (our son’s wife), as well as their grandfather and great- aunt (on mom’s side), and our own daughter (their aunt) and several cousins (on dad’s side) have T1D. 💙#testonedrop

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