Heads up that I’ll be whining here a bit. I’m feeling a little sorry for myself. A lot frustrated. Even more angry.
I’ve mentioned in previous posts that I haven’t been feeling well, I’ve been exhausted, etc… I didn’t go deep into detail because I didn’t really know what was going on and brushed off many symptoms as related to known issues.
Last weekend while people were enjoying a beautiful Saturday, I was lying in emerge. Fun times. I was seriously scared I was having a heart attack and once triaged, was put into a room immediately. When it comes to emergency medicine, I’m pretty sure you want to be the patient asked to sit in the waiting room because it’s not serious.
A number of tests were ordered including ECGs, blood panels, etc. The attending E.R. doctor came in eventually and said, “The good news is your heart is fine. The bad news is your thyroid isn’t working properly.” She then called in an internist who gave me a very (brief) overview and a prescription for beta blockers that stopped the heart palpitations (yes!), but didn’t address the thyroid issues.
This week I’ve been a mess. The “not feeling well” has gone beyond not feeling well… and I still didn’t know what was going on. I booked an appointment with my endocrinologist that oversees the Type 1 treatment. She’s thorough and autoimmune disorders are her specialty. Unfortunately they couldn’t see me until today.
Yesterday I crashed my GPs office in tears. When I say I was a mess, I mean that he concurred. Emotional, pained, exhausted, worried, hot, nauseous, stubborn high blood sugar, head aches, etc. He provided a calm listening ear, reassured me that I’ve done nothing wrong, and offered encouragement saying that things will get better.
At my endo appointment, she discussed things further. Ordered additional tests to confirm or determine the cause (suspected Graves disease.) Sent me for more bloodwork and prescribed additional meds. Pretty much told me I’m unfortunately vulnerable to the very thing that’s supposed to keep me healthy.
So I’m mad. Why has MY immune system gone rogue? Why do I have to deal with not one, but two, serious autoimmune disorders? Why do they have to complicate each other? Why can’t I just make it through a week without needing naps and Tylenol and gravol and multiple medications? I’m trying to stay positive… but honestly, I’m also heart sore at the moment.
Anyone have tips for better living and eating to protect your thyroid? Please forgive my complaints – I know that there are others dealing with far worse complaints… But honestly, at the moment, I just want to feel like me again – happy, productive me. I’m indulging a little bit of wondering… why me???
2 thoughts on “Just Wondering… Why Me?”
I am arriving a bit late to this post, so I hope your symptoms have improved. You are not alone in your feelings of frustration with endless appointments and tests. If we’re fortunate, they lead to a diagnosis and proper treatment. Otherwise, you’ll find yourself under the huge diagnosis umbrella of autoimmune disease.
Symptoms have improved somewhat, but there are still days that are a struggle. I’m working with a naturopath alongside my endocrinologist to make small changes/treatment options. The official diagnosis is Graves Disease (alongside being diagnosed as Type 1 diabetic as a child. ) Thank you for your kind words!
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